As medical parents to a child who has a rare disease, we are committed to bringing awareness, and we believe big changes start small. Our goal is to stock hospitals across the USA and Canada with insulated backpacks, medical Ketogenic diet information, and leather mats. The shock of being in a hospital long-term with a little one and a new rare diagnosis is hard enough; there needs to be advocacy and products that help take the burden of being organized away. 

After a sudden onset of seizures and over 200 within a short span, our son lost mobility, speech, and personality. He found seizure reduction on the Ketogenic diet after months in hospital. We continue to advocate and work to find a cure for our son's disease as McKenzie is on the Board for SCN2A Foundation..  Easton is 1 in 8 Billion Diagnosed with SCN2A + TBCD.